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This First of its Kind Book Banks Voices of People Living with Motor Neurone Disease

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Dell Technologies and Intel, in partnership with the Motor Neurone Disease Association and Rolls-Royce, have worked with VMLY&R to launch the book

This First of its Kind Book Banks Voices of People Living with Motor Neurone Disease

Dell Technologies and Intel, in partnership with the Motor Neurone Disease Association and Rolls-Royce, have worked with VMLY&R to create 'I Will Always Be Me,' a first-of-its-kind book for people living with motor neurone disease (MND) that banks their voices as they read aloud. 

Written by New York Times bestselling author Jill Twiss, the book is created from the perspective of a person living with MND and explains what they will be going through in a thoughtful, informative way through an immersive digital experience. To launch the project, VMLY&R created a documentary showing a group of people with MND and their families as they experience the book for the first time.

“It’s not often you get to build your client’s brand and push humanity forward, all at the same time.” said Wayne Best, CCO, VMLY&R New York. “Through the power of creativity, collaboration and technology, we've created an advanced voice banking tool that solves a complex problem in the simplest and most human way possible."

MND is a neurodegenerative condition that deteriorates muscular nerve cells, ultimately taking away a person’s ability to speak. By integrating voice banking technology with the difficult task of explaining MND to loved ones, the project simplifies and humanizes the experience and encourages individuals to take action earlier in their diagnosis.

How it works:

  • When visiting the website, people can learn about the program on the homepage and start the recording experience. The book opens, and as the user reads through the book to their loved ones, their voice is automatically recorded. 
  •  Every sound necessary to create a digital voice is embedded in the story naturally, so by the time the reader completes the book, their digital voice can be processed quickly.
  •  Once all pages are recorded, they can review their recording and re-record pieces as necessary. 
  •  If they’re ready to get a digital/synthetic voice created, they can share their recording with SpeakUnique to request a digital voice. 
  •  They can also share their recorded version of the book with friends and family via a unique link.

Supporting those living with MND:

  • Voice banking is an empowering way to maintain identity and personal expression by creating a digital replica that can be used as the disease progresses. The process involves extracting specific sounds from the recording and aligning them with pre-written text. An algorithm then extrapolates unique voice characteristics (and based on gender, age, accent, etc.) to create a synthetic voice that can be installed on any assistive technology device.
  •  Starts the process earlier (while voice is intact), as that's the best way to get a good digital voice before the person living with MND fully loses their own voice. 
  • Humanises the experience - can bank one’s voice from home, using their own device, surrounded by loved ones as a shared/meaningful experience.
  • Allows people living with MND to bank one's voice as a seamless, connected experience vs. the current way of reading disconnected phrases into a microphone.

The book is available to all here

Banking a voice by reading the book requires creating a free account (currently available only in the UK - England, Wales, Northern Ireland and Scotland).

To explore the book without banking a voice (without recording it) visit here

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Global Chief Creative Officer: Debbi Vandeven

Chief Creative Officer, North America: Jason Xenopoulos

Chief Creative Officer: Wayne Best

Executive Creative Director: Niraj Zaveri

Executive Creative Director: Justin Ebert

Creative Director: Tal Shub

Creative Director: Carlos Pabon

Group Executive Producer: Bobby Jacques

Senior Producer: Dan Bradbury

Senior Producer: Allison Raich

Senior Producer: Louisa Gargiulo

Director of Production, Experience Innovation: Fernando Martinez

Senior Content Production Business Manager: Maggie Diaz

Executive Music Producer: Theresa Notartomaso

Music Production Assistant: Karli James

Managing Director of Strategy & Insights: Jennifer Bonhomme

Strategy Director: Jorik Houweling

Executive Business Lead: Rachel Krouse

Group Director, Client Engagement: Allie Ritter

Account Supervisor: Ally Reis

Senior Account Manager: Jenny Anderson

Director, Client Engagement: Marissa Schulz

Associate Account Manager: Saira Khan

Dell Technologies

SVP of Global Brand: Liz Matthews

Senior Director, B2B Campaigns & Talent Attraction: Rachael Henke

Strategic Initiatives Lead and Project Manager: Valerie Daubert

Marketing Director, Global Customer Engagements: Peggi Kaley

Marketing Campaign Manager: Sonia Sharma

Global Sponsorship Lead: Amanda Metti

Social Impact Marketing: Jackie Keating

Corporate Communications: Talia Hill

Senior Vice President & GM, UK: Dayne Turbitt

Head of Social Impact and Corporate Sponsorships, UK&I: Ilana Lassman

Intel Corporation

VP/GM, Brand, Creative & Media: John Coyne

Director of Marketing Strategy, Brand Storytelling & Partnerships: Kari Lemiere-Mullan

Marketing Specialist: Karen Frey

Brand Strategist, Partner Brand Campaigns & Corporate Sponsorships: Kelly Lynch

UK Communications: Sarah Allen

Director of Human & AI Systems Research Lab: Lama Nachman

Director of Accessibility: Darryl Adams

Global Sales, Dell Account: Nicholas Day

Global Sales & Marketing, Dell Consumer/Small Business: Jason Priest

Motor Neuron Disease Association

Director of Care Improvement: Nick Goldup

Project Manager SLT: Richard Cave


Head of IT Innovation: Stuart Moss


Production Company: Borderland

Director & Director of Photography: Simon Frost

Director & Director of Photography: Ben Hanson

Managing Director & Executive Producer: Zoe Barlow

Production Manager: Frances Ellis

Production Assistant: Lili Bo Therin


Chief Executive Officer: Alice Smith

Digital Developer: Jeremy Jones

Chief Technology Officer & Speech Scientist: Oliver Watts

Advisor: Siddharthan Chandran


Associate Executive Producer: Florian Root

Executive Producer: Helen Tucker-Lalloo

Group Director of Production: Sean Crawford

Technical Project Manager: Tim Blokker

Executive Creative Director: Dirk van Ginkel

Creative Director & Experience Designer: Elisabetta Balconi

Senior Interactive Designer: Victoire Douy

Sr. UX Designer: Fabiola Nardecchia

Technical Director: Ben Wager

Lead Frontend Developer: Thomas Van der Meer


Music: Human

Audio Post: Post Human

EP: James Dean Wells

Creative Lead & Chief Engineer: Sloan Alexander

Post Producer: Rob Suchecki


Patient Film Composers: Adam del Ruedas del Rio, Jonathan Russell

Partner Film Composers: John Chris Barnes, Sloan Alexander, Jonathan Hubbell, Adam del Ruedas del Rio, Jonathan Russell

The Mill

Colourist: James Tillett

Colour Assist: Ashley Woods

Sr. Colour Producer: Evan Bauer

Author: Jill Twiss

Illustrator: Nicholas Stevenson

Categories: Books, Media and Entertainment

VMLY&R, Fri, 18 Feb 2022 15:09:18 GMT