Says Wright: "We asked young children to try and pronounce the names of these rare diseases to give people a greater understanding of these conditions, which affect 1 in 10 young Australian's today. For many children and their families who are living with rare diseases the Foundation is the only place for them to turn. Yet they show tremendous strength of character to battle these challenges, and we wanted to bring this important issue to the fore and raise much needed funding for the Foundation."
Stuart Turner, executive creative director, Havas Worldwide, is thrilled to be working on a project that really reflected shared values between client and agency.
Says Turner: "There are more than 400,000 children in Australia affected by more than 8,000 rare diseases. Of these 8,000, a good majority of the disease names are near impossible to pronounce.
"It's pretty sobering when you meet these children who can say the most complicated disease name with utmost ease. But when you see what they have to endure you realise that pronouncing the diseases is the easiest part. We thought this insight was remarkably moving and would move people to donate."
Says Waugh: "We've had a fantastic experience working with the team at Havas and Red Agency. It has been a really successful year for the Foundation through their ongoing support. The team, their considered approach and creative thinking truly reflect the spirit of what we're all about.
"The rare disease patient is the orphan of the health system, often without diagnosis, without treatment, without research and therefore without reason to hope. This is why the Steve Waugh Foundation exists. The Australian rare disease community is growing, with a leading number of medical and advocacy groups joining together to give those living with a rare disease a voice."
The Foundation takes a holistic approach to supporting children and young adults (0-25yrs) with the most rare diseases, working to give these children and young adults a better quality of life, offering life-changing support and the opportunity to connect with others.
Steve concludes, "We want the public to see the films, understand the story behind the Steve Waugh Foundation, then visit our website at www.stevewaughfoundation.com.au
and make a donation."
The work follows last year's award-winning inaugural Captain's Ride - a 920km bicycle ride from Sydney to Byron Bay that Steve will once again be undertaking across a new route with 70 VIP riders this October.