VMLY&Rx
Mon, 27 Jul 2020 09:33:19 GMT
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Spotlight On: Brittle Bone Society (BBS)
WPP Health shares review of patient groups' learnings and experience after teams meet
Every month, WPP Health's chief medical office welcomes different patient groups into WPP Health Practice to meet the teams so that they can share their learnings and experience. Recently, it welcomed the team at the Brittle Bone Society. Here, WPP share a quick-fire summary of what they are all about.
The Elevator Pitch
The BBS supports people affected by Osteogenesis Imperfecta (OI) – also known as Brittle Bone Disease – a genetic bone disorder characterised by fragile bones that break easily and affects people throughout their lifetime.
What does the Brittle Bone Society do?
- Host fantastic fundraising, awareness and social events, raising over £1 million for specialised wheelchairs and equipment in the last 10 years
- Provide specialised equipment and support for those with OI
- Raise awareness at policy level, and have hosted parliamentary receptions, including a keynote address from The First Minister Nicola Sturgeon
- Advance knowledge of rare bone conditions by providing research grants, holding scientific symposiums, becoming non-commercial partners with NIHR, and sharing clinical trials with their community
Something we didn’t know...
The Brittle Bone Society was the first patient support society for OI in the world.
What’s the top priority for the coming year?
- The need to fully harness the power of the digital consultation and telemedicine that has been accelerated into use by the Covid-19 crisis
- To address the drop in fundraising caused by the cancelling of fundraising events due to the pandemic.
Categories: Healthcare and Wellness, Medical Research
VMLY&Rx, Mon, 27 Jul 2020 09:33:19 GMT
